Neonatal hypoxic-ischemic encephalopathy (HIE) is a type of brain injury in newborn babies caused by a lack of oxygen and blood flow around the time of birth. It is a major threat to newborn health worldwide. In fact, HIE (often called “birth asphyxia”) accounts for about 23% of global neonatal deaths, and almost all of these deaths occur in low-resource […]
As Hope for HIE continues to grow and deepen its impact, one thing has become increasingly clear: connecting the dots between clinical research and family support is essential. Families navigating HIE need a seat at the table when it comes to research—not just as participants, but as partners. Plus, researchers greatly benefit from the lived experiences and perspectives that only […]
Methylene Blue is trending on social media claiming to be the “magic bullet” treatment for all sorts of ailments, anything and everything from anti-aging to neurological detox, highlighted from people known for promoting pseudoscience, non-licensed practitioners, and some big “wellness” influencers — but what is it? Is it safe? Effective? Applicable to HIE? What is Methylene Blue? Methylene blue is […]
Hope for HIE is excited to welcome Maggie Jalowsky to the staff as Clinical Research Program Manager. Maggie brings years of experience and expertise to the role in building research platforms for patient advocacy, and patient-centered research. Previously, Maggie worked with Children’s National in Washington DC, the Patient-Centered Outcomes Research Institute (PCORI), and most recently with Sick Cells, a national advocacy […]
It is now well-known and well-researched in 2025 that COVID-19 infection in pregnancy can lead to adverse outcomes for maternal, infant and placental health leading to increased rates of prematurity, stillbirth and HIE.Reducing the incidence and impact of HIE is essential, and a key part of Hope for HIE’s mission and vision. Today, the United States Secretary of Health and […]
Connect with families, read inspiring stories, and get helpful resources delivered right to your inbox.