Most follow-up care after neonatal hypoxic ischemic encephalopathy (HIE) has focused on motor outcomes, like cerebral palsy, epilepsy, and on some early childhood cognitive development. A new scoping review, published July 29, 2026 in the Journal of Perinatology, asks a different question: what happens to a child’s emotional health after HIE — and are we watching closely enough for it? […]
Tuesday, July 7, 2026 was a big deal for the HIE community. Hope for HIE leadership was in Washington, D.C. for the ARPA-H Making Obstetrics Care Smart (MOCS) public kick-off meeting — and we weren’t just in the room. We were driving the patient-family stakeholder perspective forward. Executive Director Betsy Pilon joined the “Collaborator Voices” session alongside Liz Powell, Founder […]
Today, the Child Neurology Society announced its 2026 award winners. Leading off with the Philip R. Dodge Young Investigator Award is Dr. Danielle Guez Barber. This is one of the highest honors a young physician-scientist in child neurology can receive — and there is no one more deserving who has dedicated their life to Hope for HIE. A HIE Parent, […]
The HIE Registry — a combined effort between Hope for HIE, the Cerebral Palsy Research Network (CPRN), and the Newborn Brain Society (NBS) — has been awarded a three-year grant from the Pediatric Epilepsy Research Foundation (PERF) to expand what it can do. For our community, that means better data, better research, and better answers. Why it matters HIE has […]
At Hope for HIE, we follow the latest research so our community can see how science is moving the needle for babies and families affected by HIE. This round-up brings together six recent studies and expert articles that, taken together, capture where the field is heading: toward care that treats the whole baby, brings families closer, looks ahead to predicting […]
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