Hope for HIE – Hypoxic Ischemic Encephalopathy Hope for HIE – Hypoxic Ischemic Encephalopathy

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Long-Term Cognitive Outcomes and Virtual A²

Long-Term Cognitive Outcomes and Virtual A²

May 5th, 2025  | Advocacy  | HIE Education  | Hope in Action  | MAB Q&As  | News  | Research  | Resources

When we talk about long-term outcomes after HIE, motor skills often take the spotlight—but what about thinking, learning, and paying attention? Cognitive development, especially executive functioning, deserves just as much, well… attention! Dr. Melisa Carrasco McCaul from the TREES Lab at the University of Wisconsin agrees. Her team is leading a groundbreaking initiative to better define and support cognition in […]

Neuren Pharmaceuticals and Hope for HIE Partner to Advance Promising Intervention for Neonatal HIE

Neuren Pharmaceuticals and Hope for HIE Partner to Advance Promising Intervention for Neonatal HIE

April 30th, 2025  | News  | Research

At the end of March 2025, Neuren Pharmaceuticals publicly shared their intent to explore their current approved neurodevelopmental NNZ-2591 compound for an indication in neonatal Hypoxic Ischemic Encephalopathy. Hope for HIE has been engaged to provide patient-family input to all parts of the development process — from study design to longitudinal follow-up. “This is a very exciting time for therapeutic […]

HIE 101: The Basics of Diagnosis and Care

HIE 101: The Basics of Diagnosis and Care

April 24th, 2025  | Advocacy  | HIE Education  | Hope in Action  | News  | Research  | Resources

When your baby is diagnosed with HIE, it can feel like you’ve suddenly been dropped into a world where everything is unfamiliar — a whirlwind of medical terms, acronyms, and test results you’re expected to understand on the fly. It’s like learning a completely new language overnight, all while navigating the emotional weight of the NICU. From lab values and […]

Building Tables, Breaking Barriers for HIE Research and Development

Building Tables, Breaking Barriers for HIE Research and Development

April 23rd, 2025  | News  | Research

Over the last 2-3 years, HIE scientific advancement has been accelerating at a quick pace — both in finding ways to learn more to decrease the incidence of neonatal and pediatric-acquired HIE, and in therapeutic and care advancements to improve the quality of life for babies, children and families. Hope for HIE has been a pivotal part in the HIE […]

HIE 101: The Role of MRI in Understanding HIE

HIE 101: The Role of MRI in Understanding HIE

April 21st, 2025  | Advocacy  | HIE Education  | Hope in Action  | News  | Research  | Resources

When you’re navigating the NICU journey, a handful of pivotal moments stand out — and MRI day is definitely one of them. For families facing a diagnosis of HIE, this scan often becomes a turning point. It’s the first time many parents hear in detail what parts of the brain may have been affected, and naturally, it raises big questions […]

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