The NICU is a place no parent expects to be, yet for many families in our community, it’s where their journey with HIE begins. Those early days can bring uncertainty, questions, and unexpected challenges, and the experience can feel overwhelming at times. NICU Awareness Month is an opportunity to recognize these experiences, honor the resilience of families, and highlight what […]
This month, we opened the floor to the questions we hear most often from our community, the ones that come up again and again in messages, comments, and one-on-one calls. Annie Gunning, Hope for HIE’s Child Life Specialist and Grief Counselor, spent 20+ years working in a hospital child life department before bringing that same expertise into her role with […]
Our community shows up for families touched by HIE in ways big and small. A sign held up in a stadium. A story shared with a stranger. A call to serve as Hospital Ambassador or Peer Support Mentor. Just as often, it’s something quieter: a gift made that funds the work families depend on. Every family finds their own way […]
One of the hardest parts of HIE is the waiting. Families often leave the NICU or PICU with test results, medical language, follow-up appointments, and a phrase they may hear over and over: We will have to wait and see. Wait and see how your baby develops. Wait and see whether new challenges appear. Wait and see what the MRI […]
Recently, the Lee family attended a World Cup game in Canada, their home country. They reached out to us, wondering if this could be a good opportunity to help spread awareness of Hope for HIE and HIE to a wider audience. How could they make this experience about more than just the game? Could they try to get Hope for […]
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