Tuesday, July 7, 2026 was a big deal for the HIE community. Hope for HIE leadership was in Washington, D.C. for the ARPA-H Making Obstetrics Care Smart (MOCS) public kick-off meeting — and we weren’t just in the room. We were driving the patient-family stakeholder perspective forward. Executive Director Betsy Pilon joined the “Collaborator Voices” session alongside Liz Powell, Founder […]
No family should have to navigate an HIE diagnosis alone. That’s the heart of our HIE Ambassador Program — connecting families with a local, experienced member of our community who understands the road ahead, because they’ve walked it themselves. Ambassadors act as the “bridge” between their local hospital and health systems and Hope for HIE’s longitudinal support, offering education, connection, and a […]
Simple Summer Activities That Support Emotional Expression, Coping, and Connection Summer doesn’t have to only include structured therapy or carefully planned interventions to be healing. Sometimes, the most powerful coping tool available to your child is already in their backyard — a bucket of water, a box of sidewalk chalk, or a pile of blocks. In this month’s Child Life […]
Today, the Child Neurology Society announced its 2026 award winners. Leading off with the Philip R. Dodge Young Investigator Award is Dr. Danielle Guez Barber. This is one of the highest honors a young physician-scientist in child neurology can receive — and there is no one more deserving who has dedicated their life to Hope for HIE. A HIE Parent, […]
Every year, the Hope for HIE community comes together to raise awareness and critical funds for our programs and services supporting families impacted by Hypoxic Ischemic Encephalopathy (HIE). Hustle for Hope 2026 was no different. Whether you gathered a team of family and friends, ran on your own, or joined us at a local in-person event, you helped bring hope […]
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