In honor of Father’s Day, we’re spotlighting Motti Eisenbach — HIE parent, generous donor, and one of our newest Peer Support Mentors. Some moments can split a life into before and after. For Motti Eisenbach and his wife Rena, that moment came in April 2024, when Rena gave birth to their daughter Temima at just 31 weeks and 5 days following […]
Many children in the HIE community undergo surgical procedures — sometimes several over the course of their lives. And yet, for most families, anesthesia can feel overwhelming or like a mystery. What exactly happens before, during, and after surgery? Who is on the team? And how do you prepare a child with HIE for what’s coming? In our recently streamed […]
Hope for HIE families, researchers, clinicians, and advocates from around the world came together, online and in-person, for the 2026 Family & Community Conference, held April 24–26 at the Hyatt Regency Boston. Themed around connection, support, and science, the hybrid event welcomed the full spectrum of the HIE community — from newly diagnosed families and seasoned advocates to leading neonatologists […]
We are thrilled to announce the newest additions to Hope for HIE’s Medical Advisory Board (MAB), bringing incredible depth, expertise, and heart to our growing multidisciplinary team. These seven clinicians, researchers, and advocates represent disciplines we have long sought to fill — from obstetrics and maternal-fetal medicine to neonatal nursing, neuropsychology, and beyond. We are so grateful for their commitment […]
Navigating an HIE diagnosis is its own complex journey—and for some families, that path eventually leads to a second diagnosis: autism. In this Peer Perspective panel, Hope for HIE social worker Jen Schaefer was joined by community members Crystal F., Kacie M., and Crystal E., who shared their lived experiences at the intersection of HIE and autism. Together, they explored […]
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