Remember earlier this year when we asked our HIE families to share about sleep issues and HIE? Well, this community-driven effort has culminated in these published results! This achievement, made possible by Dr. Renée Shellhaas and her research team at WASHU, the continued support of Hope’s Medical Advisory Board, and – most importantly – our HIE families, is a collaborative […]
Navigating HIE can be complex and overwhelming, and whether families are in the initial weeks of diagnosis or are dealing with new challenges, impacts, and outcomes over time, connecting them with guidance, support, and resources can make all the difference. A NICU, PICU, or any planned or unplanned hospitalization at any moment of this journey can heighten the need for […]
“Ethics” might be a small word, but in the world of neonatal clinical trials, it has big implications: these are the rules and guidelines that ensure research is done safely and fairly. It is the foundation of trust, safety, and potential progress for therapeutic advancements for neonatal-acquired HIE. And few experts are more informed about the importance and power of […]
Grieving the loss of a loved one is not a linear experience, and there’s no one-size-fits-all solution for every family. At Hope, we want to provide families with various resources to help the healing process and empower them to find what works best for their unique situation. That’s why Annie Gunning, Hope’s Certified Child Life Specialist and Grief Counselor, met […]
As the saying goes, “It takes a village,” and at Hope, we have a strong one. Every month, our HIE Peer Perspective series brings together committed members of the HIE community to share their valuable insights into the diverse impacts and outcomes of HIE, offering firsthand experiences and guidance on navigating the challenges it presents. Our most recent session focused […]
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