Families facing hypoxic ischemic encephalopathy often turn to internet research for information about the condition and possible treatments. This tool will help families critically analyze what they are reading and if it is applicable to their child, and worth elevating to their medical team.
After hearing from thousands of families that sleep issues are one of the top unmet needs of our community across all outcomes and impacts, Dr. Renée Shellhaas, a pediatric neurologist and researcher, principal investigator of the Neonatal Seizure Registry, and one of Hope’s esteemed Medical Advisory Board members, and her team launched a survey for our community that aimed at […]
As the saying goes, “It takes a village,” and at Hope, we have a strong one. Every month, our HIE Peer Perspective series brings together committed members of the HIE community to share their valuable insights into the diverse impacts and outcomes of HIE, offering firsthand experiences and guidance on navigating the challenges it presents. Our most recent session focused […]
Q&A with Dr. Lana Chalak, Dr. Kenji Cunnion, Dr. Nikki Robertson, and Dr. Brian Kalish We’ll start with where we are. HIE is not a one-size-fits-all condition, and there is no one-size-fits-all treatment approach. Aside from cooling, which has only been considered the standard of care for the last two decades and is not universally available, equitable, and effective in […]
Every child deserves the opportunity to navigate their path and confidently own their story, but for children with HIE, their path to self-advocacy can be uniquely challenging. That’s why Annie Gunning, Hope for HIE’s certified child life specialist, recently participated in a Q&A session aimed at equipping them with tools and strategies that will empower them to advocate for their […]
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