Receiving a diagnosis of neonatal hypoxic-ischemic encephalopathy (HIE) can be overwhelming for any family, and learning that your child may be at risk for secondary microcephaly can add to those concerns. To help navigate these concerns, we’ve compiled answers to some frequently asked questions (FAQs) to provide clarity, hope, and resources for HIE families. 1. What is secondary microcephaly? Secondary […]
We know that Augmentative and Alternative Communication (AAC) is about giving every child a voice and a way to connect with the world around them. We know that understanding the different elements of AAC can make a big difference in how we support and empower communication for those who need it. And we know that there’s a lot to learn, […]
Recently, many areas in the United States have experienced significant natural disasters displacing and impacting families. We are in close contact with many of our HIE families in impacted regions, and are always here to connect and support families facing situations in the wake of natural disasters, including dedicated social work, child life and peer support, as well as the […]
Learning & Attention challenges are prevalent in our community. While early identification is possible between the ages of 3-5, most children are not identified until ages 5-8 because of how the brain develops, and when higher order thinking and learning begins to happen. The incidence is estimated roughly 40% of those who do not develop cerebral palsy, and may be […]
If we were to ask any parent, family member, or caregiver in our community how important it is to provide proper support for siblings of children with medical complexity, you can bet we’d get an emphatic “VERY!” as their reply. We know this support is important, but do we really know why? As it turns out, researchers have been collecting […]
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