Genetic research in HIE is still in its early stages, but it’s opening the door to potentially transformative advances in both prenatal and postnatal care. And while it may not have all of the answers yet, its insights are building a foundation for supporting HIE families in the future – potentially offering explanations, guiding care, and paving the way for […]
You may have seen the news that Hope for HIE, Cerebral Palsy Research Network, and the Newborn Brain Society announced a collaboration and grant funding to build a patient-family research registry for neonatal and pediatric-acquired Hypoxic Ischemic Encephalopathy. You may be asking yourself “What does this mean to my child and family with HIE?” You’ve got questions, we’ve got answers! […]
PEDIATRIC NEUROLOGY ORGANIZATIONS PARTNER, RECEIVE FUNDING TO BUILD REGISTRY FOR NEONATAL HYPOXIC ISCHEMIC ENCEPHALOPATHY Cerebral Palsy Research Network, Hope for HIE and Newborn Brain Society announce a partnership and receipt of funding to develop a patient registry for neonatal hypoxic ischemic encephalopathy (HIE). Investigators Danielle Guez Barber, MD, PhD, neonatal neurologist at Colorado Children’s Hospital, and Zach Vesoulis, MD, neonatologist […]
Did you know there are currently ZERO published long-term follow up guidelines for neonatal and pediatric-acquired Hypoxic Ischemic Encephalopathy? That’s about to change. Members of Hope for HIE’s Medical Advisory Board, and the greater neonatology and pediatric neurology community are coming together to tackle this lack of important care for HIE. First, we need to know what care looks like […]
One of the biggest challenges of being thrust into an unexpected journey with a baby facing HIE and/or neonatal seizures is sometimes feeling anxiety when people ask if you have any questions. Enter the Neonatal Seizure Registry — a research group that has been advancing care and understanding of the whole family impact of neonatal seizures, and building helpful tools […]
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