When studying neonatal seizures, researchers often focus on the patient experience, leaving the emotional journey of parents less explored. Given that HIE is the top cause of neonatal seizures, it is reasonably assumed that our HIE parents navigate their own complex emotional path throughout this journey, marking a significant gap in providing them with effective, tailored support. That’s why we’re […]
While a quick Google search of “TREES + Wisconsin” will inform you of the types of trees native to that area (Sugar Maple, Bur Oak, and the Red Musclewood, if you’re curious), an entry of “TREES + Lab + Wisconsin” will guide you right to Dr. Melissa Carrasco McCaul’s research lab, which is paving the way for more effective strategies […]
Remember earlier this year when we asked our HIE families to share about sleep issues and HIE? Well, this community-driven effort has culminated in these published results! This achievement, made possible by Dr. Renée Shellhaas and her research team at WASHU, the continued support of Hope’s Medical Advisory Board, and – most importantly – our HIE families, is a collaborative […]
“Ethics” might be a small word, but in the world of neonatal clinical trials, it has big implications: these are the rules and guidelines that ensure research is done safely and fairly. It is the foundation of trust, safety, and potential progress for therapeutic advancements for neonatal-acquired HIE. And few experts are more informed about the importance and power of […]
Are there some babies born with HIE that have a genetic condition? Is it really HIE? Are there genetic factors that can make a baby more susceptible to HIE? The short answers? Yes, often yes (you can have both a genetic condition AND a brain injury) and likely yes. A decade ago, many HIE families were sent for metabolic testing […]
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