When studying neonatal seizures, researchers often focus on the patient experience, leaving the emotional journey of parents less explored. Given that HIE is the top cause of neonatal seizures, it is reasonably assumed that our HIE parents navigate their own complex emotional path throughout this journey, marking a significant gap in providing them with effective, tailored support. That’s why we’re […]
While a quick Google search of “TREES + Wisconsin” will inform you of the types of trees native to that area (Sugar Maple, Bur Oak, and the Red Musclewood, if you’re curious), an entry of “TREES + Lab + Wisconsin” will guide you right to Dr. Melissa Carrasco McCaul’s research lab, which is paving the way for more effective strategies […]
Understanding the Connection Between HIE and Cortical Vision Impairment in Children When a baby experiences a lack of oxygen to their brain—before, during, or after birth—it can lead to a condition called hypoxic ischemic encephalopathy (HIE). HIE is a type of brain injury that affects how different areas of the brain function, including the parts that process vision. One of […]
Remember earlier this year when we asked our HIE families to share about sleep issues and HIE? Well, this community-driven effort has culminated in these published results! This achievement, made possible by Dr. Renée Shellhaas and her research team at WASHU, the continued support of Hope’s Medical Advisory Board, and – most importantly – our HIE families, is a collaborative […]
Navigating HIE can be complex and overwhelming, and whether families are in the initial weeks of diagnosis or are dealing with new challenges, impacts, and outcomes over time, connecting them with guidance, support, and resources can make all the difference. A NICU, PICU, or any planned or unplanned hospitalization at any moment of this journey can heighten the need for […]
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