Did you know there are currently ZERO published long-term follow up guidelines for neonatal and pediatric-acquired Hypoxic Ischemic Encephalopathy? That’s about to change. Members of Hope for HIE’s Medical Advisory Board, and the greater neonatology and pediatric neurology community are coming together to tackle this lack of important care for HIE. First, we need to know what care looks like […]
Hope for HIE is thrilled to welcome two team members to support the organizations mission: Gina Abraham, MS, as Clinical Research Program Manager, and Stephanie Silkorski as Program Coordinator.
Learning & Attention challenges are prevalent in our community. While early identification is possible between the ages of 3-5, most children are not identified until ages 5-8 because of how the brain develops, and when higher order thinking and learning begins to happen. The incidence is estimated roughly 40% of those who do not develop cerebral palsy, and may be […]
If we were to ask any parent, family member, or caregiver in our community how important it is to provide proper support for siblings of children with medical complexity, you can bet we’d get an emphatic “VERY!” as their reply. We know this support is important, but do we really know why? As it turns out, researchers have been collecting […]
As the saying goes, “It takes a village,” and at Hope, we have a strong one. Every month, our HIE Peer Perspective series brings together committed members of the HIE community to share their valuable insights into the diverse impacts and outcomes of HIE, offering firsthand experiences and guidance on navigating its various challenges. One of our previous sessions focused […]
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