PEDIATRIC NEUROLOGY ORGANIZATIONS PARTNER, RECEIVE FUNDING TO BUILD REGISTRY FOR NEONATAL HYPOXIC ISCHEMIC ENCEPHALOPATHY Cerebral Palsy Research Network, Hope for HIE and Newborn Brain Society announce a partnership and receipt of funding to develop a patient registry for neonatal hypoxic ischemic encephalopathy (HIE). Investigators Danielle Guez Barber, MD, PhD, neonatal neurologist at Colorado Children’s Hospital, and Zach Vesoulis, MD, neonatologist […]
We all know that friendships can be tough to navigate, and for children within our Hope community, there are often more challenges to consider: differences in communication styles, physical abilities, sensory sensitivities, or emotional regulation can all influence how they (and their siblings) connect with their peers. So, how can parents and caregivers help their children build meaningful friendships in […]
As the saying goes, “It takes a village,” and at Hope, we have a strong one. Every month, our HIE Peer Perspective series brings together committed members of the HIE community to share their valuable insights into the diverse impacts and outcomes of HIE, offering firsthand experiences and guidance on navigating its various challenges. Our latest session focused on navigating […]
Receiving a diagnosis of neonatal hypoxic-ischemic encephalopathy (HIE) can be overwhelming for any family, and learning that your child may be at risk for secondary microcephaly can add to those concerns. To help navigate these concerns, we’ve compiled answers to some frequently asked questions (FAQs) to provide clarity, hope, and resources for HIE families. 1. What is secondary microcephaly? Secondary […]
We know that Augmentative and Alternative Communication (AAC) is about giving every child a voice and a way to connect with the world around them. We know that understanding the different elements of AAC can make a big difference in how we support and empower communication for those who need it. And we know that there’s a lot to learn, […]
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