“Ethics” might be a small word, but in the world of neonatal clinical trials, it has big implications: these are the rules and guidelines that ensure research is done safely and fairly. It is the foundation of trust, safety, and potential progress for therapeutic advancements for neonatal-acquired HIE. And few experts are more informed about the importance and power of […]
Grieving the loss of a loved one is not a linear experience, and there’s no one-size-fits-all solution for every family. At Hope, we want to provide families with various resources to help the healing process and empower them to find what works best for their unique situation. That’s why Annie Gunning, Hope’s Certified Child Life Specialist and Grief Counselor, met […]
As the saying goes, “It takes a village,” and at Hope, we have a strong one. Every month, our HIE Peer Perspective series brings together committed members of the HIE community to share their valuable insights into the diverse impacts and outcomes of HIE, offering firsthand experiences and guidance on navigating the challenges it presents. Our most recent session focused […]
Are there some babies born with HIE that have a genetic condition? Is it really HIE? Are there genetic factors that can make a baby more susceptible to HIE? The short answers? Yes, often yes (you can have both a genetic condition AND a brain injury) and likely yes. A decade ago, many HIE families were sent for metabolic testing […]
We are sharing three opportunities to participate in research that may interest our community. More information about each study is available on our Clinical Trial & Research Hub. Parental Feedback for Neonatal Resuscitation (SURV1VE trial): A new protocol for neonatal CPR shows promise to improve outcomes and the study team is looking for parents perspectives on communication, enrollment and consent […]
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