During HIE Awareness Month, we shine a light on the stories, people, and progress shaping our community. This week, we’re turning the spotlight toward the dedicated members of Hope for HIE’s Board of Directors and Medical Advisory Board — parents, professionals, and advocates who lend their time, talents, and expertise to guide our mission forward. We invited our Board of […]
One of the most challenging parts of navigating an HIE diagnosis is that there are many possible causes—and often, there aren’t clear answers about what caused it or how it will affect a baby or child. Dr. Monica Arroyo, a pediatric neurologist at Joe DiMaggio Children’s Hospital in Florida, shares that clinicians deeply understand how painful that uncertainty can be. […]
If you’ve ever had the chance to meet Allison Moise—whether at one of our mom retreats, in a support group, or through Hope for HIE’s peer mentorship program—you probably felt it right away: that grounded, steady presence that makes you breathe a little easier. Allison has worn many hats within our community: parent, peer, mentor, and fierce advocate. Over the […]
Each year, HIE Awareness Month is a time to amplify voices, share stories, and build a stronger, more connected community. Our 2025 Awareness Month Ambassadors are parents, advocates, and changemakers who are dedicated to making a difference—raising awareness, offering support, and putting Hope in Action. In this special collection of letters, our Ambassadors share their journeys, challenges, and hopes for […]
Advocacy isn’t just a buzzword for us—it’s about taking real action – whether big or small – to support families navigating HIE. Through Hope in Action, we’re working to raise awareness, connect families with essential resources, and push for meaningful change in healthcare, education, and policy. And no matter what advocacy looks like to you, one thing is clear: real […]
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