At Hope for HIE, we are constantly working to bridge families with the latest research, emerging therapies, and the experts who are pushing the field forward. Recently, we sat down with Dr. Brian Kalish, neonatologist, neuroscientist, and Vice Chair of Hope for HIE’s Medical Advisory Board, to learn about a new clinical trial he’s leading at Boston Children’s Hospital. This study […]
and the Hustle goes to… Wow—Hustle for Hope 2025 was one for the books! Whether you hit the pavement, strolled with your crew, or cheered from the sidelines, our community showed up in a huge way. Across the world, you helped raise awareness, funds, and most importantly—hope—for every family facing HIE. This year, we had over 1,000 registrants, hosted 13 […]
When we talk about long-term outcomes after HIE, motor skills often take the spotlight—but what about thinking, learning, and paying attention? Cognitive development, especially executive functioning, deserves just as much, well… attention! Dr. Melisa Carrasco McCaul from the TREES Lab at the University of Wisconsin agrees. Her team is leading a groundbreaking initiative to better define and support cognition in […]
When your baby is diagnosed with HIE, it can feel like you’ve suddenly been dropped into a world where everything is unfamiliar — a whirlwind of medical terms, acronyms, and test results you’re expected to understand on the fly. It’s like learning a completely new language overnight, all while navigating the emotional weight of the NICU. From lab values and […]
When you’re navigating the NICU journey, a handful of pivotal moments stand out — and MRI day is definitely one of them. For families facing a diagnosis of HIE, this scan often becomes a turning point. It’s the first time many parents hear in detail what parts of the brain may have been affected, and naturally, it raises big questions […]
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