Navigating an HIE diagnosis is its own complex journey—and for some families, that path eventually leads to a second diagnosis: autism. In this Peer Perspective panel, Hope for HIE social worker Jen Schaefer was joined by community members Crystal F., Kacie M., and Crystal E., who shared their lived experiences at the intersection of HIE and autism. Together, they explored […]
Every April, HIE Awareness Month serves as a perfect time to elevate the voices of our community and our families. By sharing our stories and experiences with one another, we help to shape research and support services, and we build a stronger community and light the path brighter for the families to come. These spotlights share a small part of […]
Gabrielle Ward-Collier is a mother of 5 from Saint Johns, Michigan, USA. She and her husband were introduced to Hope for HIE while still in the NICU after their daughter Ophelia’s birth in 2022. They received a notecard with website information and immediately started reading through family resources, which helped them to know they were not alone during such an […]
Presented by Hope for HIE and the Newborn Brain Society In April 2026, during HIE Awareness Month, Hope for HIE and the Newborn Brain Society are partnering to improve family-centered care for babies and families facing neonatal Hypoxic Ischemic Encephalopathy. Together, they are launching Polar Bear Care through a worldwide Hold-a-thon, encouraging NICUs around the world to implement this family-centered, […]
Pregnancy after an HIE diagnosis can bring forward a complicated mix of emotions—hope and fear, grief and joy, confidence, and anxiety—all at the same time. In this Peer Perspective panel, Hope for HIE social worker, Jen Schafer, was joined by community members Sarah and Suzi, who shared their lived experiences navigating pregnancy, birth, and family life after HIE. As with […]
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