Good oral health is about so much more than just a bright smile—it’s tied to nutrition, speech, overall health, and even quality of life. Yet, many families with medically complex children face an uphill battle when it comes to dental care: from finding a dentist who understands their unique challenges to managing sensory sensitivities, oral motor delays, and the impact […]
We’ve said it before, and we’ll say it again: the Neonatal Seizure Registry (NSR) is the gold standard for integrating parental input at every step—from study design all the way to its dissemination. Two incredible members of the NSR team—Dr. Monica Lemmon, a pediatric neurologist at Duke Health and a valued member of Hope’s Medical Advisory Board, and Natalie Field, […]
As Hope for HIE continues to expand its impact, it has become clear that bridging the gap between clinical research and family support is critical. Families affected by HIE need representation in research studies to ensure their voices are heard, and researchers need insights that reflect real-world experiences to improve outcomes. This is where Gina Abraham’s role as Clinical Research […]
Genetic research in HIE is still in its early stages, but it’s opening the door to potentially transformative advances in both prenatal and postnatal care. And while it may not have all of the answers yet, its insights are building a foundation for supporting HIE families in the future – potentially offering explanations, guiding care, and paving the way for […]
Receiving a diagnosis of neonatal hypoxic-ischemic encephalopathy (HIE) can be overwhelming for any family, and learning that your child may be at risk for secondary microcephaly can add to those concerns. To help navigate these concerns, we’ve compiled answers to some frequently asked questions (FAQs) to provide clarity, hope, and resources for HIE families. 1. What is secondary microcephaly? Secondary […]
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