As the season of giving unfolded, Hope for HIE was honored to conclude 12 Days of Hope—a heartfelt reflection on the many ways our community shows up for families around the world impacted by hypoxic ischemic encephalopathy (HIE). Over twelve days, we shared powerful stories directly from our families, volunteers, and advocates—stories told in their own words. Each one served as […]
At Hope for HIE, we are constantly working to bridge families with the latest research, emerging therapies, and the experts who are pushing the field forward. Recently, we sat down with Dr. Brian Kalish, neonatologist, neuroscientist, and Vice Chair of Hope for HIE’s Medical Advisory Board, to learn about a new clinical trial he’s leading at Boston Children’s Hospital. This study […]
When we talk about long-term outcomes after HIE, motor skills often take the spotlight—but what about thinking, learning, and paying attention? Cognitive development, especially executive functioning, deserves just as much, well… attention! Dr. Melisa Carrasco McCaul from the TREES Lab at the University of Wisconsin agrees. Her team is leading a groundbreaking initiative to better define and support cognition in […]
When your baby is diagnosed with HIE, it can feel like you’ve suddenly been dropped into a world where everything is unfamiliar — a whirlwind of medical terms, acronyms, and test results you’re expected to understand on the fly. It’s like learning a completely new language overnight, all while navigating the emotional weight of the NICU. From lab values and […]
When you’re navigating the NICU journey, a handful of pivotal moments stand out — and MRI day is definitely one of them. For families facing a diagnosis of HIE, this scan often becomes a turning point. It’s the first time many parents hear in detail what parts of the brain may have been affected, and naturally, it raises big questions […]
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