When we talk about long-term outcomes after HIE, motor skills often take the spotlight—but what about thinking, learning, and paying attention? Cognitive development, especially executive functioning, deserves just as much, well… attention! Dr. Melisa Carrasco McCaul from the TREES Lab at the University of Wisconsin agrees. Her team is leading a groundbreaking initiative to better define and support cognition in […]
When your baby is diagnosed with HIE, it can feel like you’ve suddenly been dropped into a world where everything is unfamiliar — a whirlwind of medical terms, acronyms, and test results you’re expected to understand on the fly. It’s like learning a completely new language overnight, all while navigating the emotional weight of the NICU. From lab values and […]
When you’re navigating the NICU journey, a handful of pivotal moments stand out — and MRI day is definitely one of them. For families facing a diagnosis of HIE, this scan often becomes a turning point. It’s the first time many parents hear in detail what parts of the brain may have been affected, and naturally, it raises big questions […]
One of the most challenging parts of navigating an HIE diagnosis is that there are many possible causes—and often, there aren’t clear answers about what caused it or how it will affect a baby or child. Dr. Monica Arroyo, a pediatric neurologist at Joe DiMaggio Children’s Hospital in Florida, shares that clinicians deeply understand how painful that uncertainty can be. […]
Advocacy isn’t just a buzzword for us—it’s about taking real action – whether big or small – to support families navigating HIE. Through Hope in Action, we’re working to raise awareness, connect families with essential resources, and push for meaningful change in healthcare, education, and policy. And no matter what advocacy looks like to you, one thing is clear: real […]
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