Hope for HIE – Hypoxic Ischemic Encephalopathy Hope for HIE – Hypoxic Ischemic Encephalopathy

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Facing Natural Disasters: Resources for the HIE Community

Facing Natural Disasters: Resources for the HIE Community

October 11th, 2024  | Advocacy  | Resources

Recently, many areas in the United States have experienced significant natural disasters displacing and impacting families. We are in close contact with many of our HIE families in impacted regions, and are always here to connect and support families facing situations in the wake of natural disasters, including dedicated social work, child life and peer support, as well as the […]

Long-Term Follow Up Guidelines for HIE – Hypoxic Ischemic Encephalopathy

Long-Term Follow Up Guidelines for HIE – Hypoxic Ischemic Encephalopathy

October 11th, 2024  | Advocacy  | News  | Research

Did you know there are currently ZERO published long-term follow up guidelines for neonatal and pediatric-acquired Hypoxic Ischemic Encephalopathy? That’s about to change. Members of Hope for HIE’s Medical Advisory Board, and the greater neonatology and pediatric neurology community are coming together to tackle this lack of important care for HIE. First, we need to know what care looks like […]

Autism vs. “Autistic-Like” Traits: What’s the Difference?

Autism vs. “Autistic-Like” Traits: What’s the Difference?

September 30th, 2024  | Advocacy  | News

HIE & Autism: The Connection to HIE and Understanding Autism’s Etiology Autism Spectrum Disorder (ASD) is a complex developmental condition characterized by challenges in communication, social interaction, and behavior. As our understanding of autism evolves, so does our comprehension of the different factors that may contribute to its development. One area of increasing research interest is the relationship between Hypoxic […]

HIE and Cortical Vision Impairment

HIE and Cortical Vision Impairment

September 1st, 2024  | Advocacy  | HIE Education  | News

Understanding the Connection Between HIE and Cortical Vision Impairment in Children When a baby experiences a lack of oxygen to their brain—before, during, or after birth—it can lead to a condition called hypoxic ischemic encephalopathy (HIE). HIE is a type of brain injury that affects how different areas of the brain function, including the parts that process vision. One of […]

HIE Hospital Ambassador Program Launches with Seattle Children’s Hospital

HIE Hospital Ambassador Program Launches with Seattle Children’s Hospital

August 12th, 2024  | Advocacy  | News  | Resources

Navigating HIE can be complex and overwhelming, and whether families are in the initial weeks of diagnosis or are dealing with new challenges, impacts, and outcomes over time, connecting them with guidance, support, and resources can make all the difference. A NICU, PICU, or any planned or unplanned hospitalization at any moment of this journey can heighten the need for […]

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