Cerebral palsy is one of the more common diagnoses from HIE. While HIE-acquired cerebral palsy only accounts for roughly 10-15% of all cerebral palsy causes, roughly 40% of children diagnosed with HIE will go on to be diagnosed with cerebral palsy.
We are sharing all about the connection between HIE and cerebral palsy during March, and sharing resources for our community to learn more.
Good oral health is about so much more than just a bright smile—it’s tied to nutrition, speech, overall health, and even quality of life. Yet, many families with medically complex children face an uphill battle when it comes to dental care: from finding a dentist who understands their unique challenges to managing sensory sensitivities, oral motor delays, and the impact […]
Over the last several days, many concerns have been expressed in the United States and globally about several executive actions of the new leadership administration in the United States that could negatively impact, or are impacting, the HIE community in the United States and around the world. While it is not uncommon in the first several weeks of a new […]
Navigating an HIE diagnosis can be overwhelming, and having the right support at the right time can make all the difference. From the moment of diagnosis and throughout every stage of their journey, families need reliable information, compassionate guidance, and a strong support network—no matter the impact or outcome. To ensure this, we are committed to building a team that […]
Can you believe it’s almost time for Hope for HIE’s 6th annual Hustle for Hope 5K Event? Last year, we doubled our number of participants, had several Hustle Hosts bring communities together all around the world, and grossed more than $100,000 to help our mission of improving the quality of life for families impacted by neonatal and pediatric-acquired HIE! This […]
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