Advocacy isn’t just a buzzword for us—it’s about taking real action – whether big or small – to support families navigating HIE. Through Hope in Action, we’re working to raise awareness, connect families with essential resources, and push for meaningful change in healthcare, education, and policy. And no matter what advocacy looks like to you, one thing is clear: real […]
Hope for HIE hosted its second workshop at the 2025 International Newborn Brain Conference in February, as a part of the process to develop long-term follow-up guidelines for neonatal Hypoxic Ischemic Encephalopathy, as no guidelines currently exist. Children with HIE often are only followed closely until age 2 or 3, and many will have developmental impacts into childhood and beyond. […]
HIE AWARENESS MONTH IS COMING! APRIL IS RIGHT AROUND THE CORNER! We are excited to announce our annual global theme for 2025: HOPE IN ACTION. We look forward to sharing the many stories of how not only Hope for HIE and our volunteers, families, and staff are moving forward the advocacy landscape for HIE, but the many stories in our […]
Last night, a talking point to discredit scientific spending in the United States was misused creating additional confusion surrounding research, and specifically research using mice to advance important therapeutics and understanding of diseases and conditions. HIE is no stranger to mouse models to advance research. The Vannucci model, funded by the NIH, sas been the “gold standard” for decades. That, […]
Is HIE rare or not? That is a common question! The answer, as usual with HIE, is not a clear yes or no but rather a sometimes or maybe, or depends on the context and who you ask. HIE itself is typically not considered rare, impacting roughly 2-3 per 1,000 live births in high-income countries (which is considered rare in […]
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