Access to mental health support and resources is critically important for families who find themselves in the NICU and PICU. Parents whose children are admitted to the NICU or PICU have a 45-50% greater incidence of mental health disorders such as PTSD, Anxiety & Depression. There also remains significant inequity for non-white, non-preemie, non-maternal patients and families in the NICU, […]
We know support isn’t one-size-fits-all, and while we often focus on parents and caregivers, our kids—both those diagnosed with HIE and their siblings—need just as much care, understanding, and connection. Over the past year, and under the direction of Annie Gunning, Certified Child Life Specialist and Grief Counselor, we’ve been listening, learning, and refining—piloting new content, gathering feedback, and adjusting […]
When your baby is diagnosed with HIE, it can feel like you’ve suddenly been dropped into a world where everything is unfamiliar — a whirlwind of medical terms, acronyms, and test results you’re expected to understand on the fly. It’s like learning a completely new language overnight, all while navigating the emotional weight of the NICU. From lab values and […]
When you’re navigating the NICU journey, a handful of pivotal moments stand out — and MRI day is definitely one of them. For families facing a diagnosis of HIE, this scan often becomes a turning point. It’s the first time many parents hear in detail what parts of the brain may have been affected, and naturally, it raises big questions […]
When we talk about the roots of today’s HIE advocacy and research in the United States and wtih NIH funding, we turn to the story of Rosemary Kennedy—a young woman whose life forever changed her, her family, and in turn, the world. Born in 1918, Rosemary was the third child of Joseph and Rose Kennedy. Many experts believe Rosemary experienced […]
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