An HIE diagnosis doesn’t just change your child’s story, it reshapes the relationships around you. In this Peer Perspective Series panel, two HIE moms, Shayna B. and Kati L., opened up about how relationships with partners, family, medical teams, and community shifted, strained, and grew across their HIE journeys. We’re sharing the key notes from the Peer Perspective Panel, along […]
No family should have to navigate an HIE diagnosis alone. That’s the heart of our HIE Ambassador Program — connecting families with a local, experienced member of our community who understands the road ahead, because they’ve walked it themselves. Ambassadors act as the “bridge” between their local hospital and health systems and Hope for HIE’s longitudinal support, offering education, connection, and a […]
Simple Summer Activities That Support Emotional Expression, Coping, and Connection Summer doesn’t have to only include structured therapy or carefully planned interventions to be healing. Sometimes, the most powerful coping tool available to your child is already in their backyard — a bucket of water, a box of sidewalk chalk, or a pile of blocks. In this month’s Child Life […]
Today, the Child Neurology Society announced its 2026 award winners. Leading off with the Philip R. Dodge Young Investigator Award is Dr. Danielle Guez Barber. This is one of the highest honors a young physician-scientist in child neurology can receive — and there is no one more deserving who has dedicated their life to Hope for HIE. A HIE Parent, […]
The HIE Registry — a combined effort between Hope for HIE, the Cerebral Palsy Research Network (CPRN), and the Newborn Brain Society (NBS) — has been awarded a three-year grant from the Pediatric Epilepsy Research Foundation (PERF) to expand what it can do. For our community, that means better data, better research, and better answers. Why it matters HIE has […]
Connect with families, read inspiring stories, and get helpful resources delivered right to your inbox.
Connect with families, read inspiring stories, and get helpful resources delivered right to your inbox.
