Our community shows up for families touched by HIE in ways big and small. A sign held up in a stadium. A story shared with a stranger. A call to serve as Hospital Ambassador or Peer Support Mentor. Just as often, it’s something quieter: a gift made that funds the work families depend on. Every family finds their own way […]
Most follow-up care after neonatal hypoxic ischemic encephalopathy (HIE) has focused on motor outcomes, like cerebral palsy, epilepsy, and on some early childhood cognitive development. A new scoping review, published July 29, 2026 in the Journal of Perinatology, asks a different question: what happens to a child’s emotional health after HIE — and are we watching closely enough for it? […]
One of the hardest parts of HIE is the waiting. Families often leave the NICU or PICU with test results, medical language, follow-up appointments, and a phrase they may hear over and over: We will have to wait and see. Wait and see how your baby develops. Wait and see whether new challenges appear. Wait and see what the MRI […]
Recently, the Lee family attended a World Cup game in Canada, their home country. They reached out to us, wondering if this could be a good opportunity to help spread awareness of Hope for HIE and HIE to a wider audience. How could they make this experience about more than just the game? Could they try to get Hope for […]
Tuesday, July 7, 2026 was a big deal for the HIE community. Hope for HIE leadership was in Washington, D.C. for the ARPA-H Making Obstetrics Care Smart (MOCS) public kick-off meeting — and we weren’t just in the room. We were driving the patient-family stakeholder perspective forward. Executive Director Betsy Pilon joined the “Collaborator Voices” session alongside Liz Powell, Founder […]
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