While epilepsy and cerebral palsy get far more attention as noted outcomes from HIE, the prevalence of learning, attention and behavioral challenges, especially for those who have experienced a more mild outcome from HIE, are a significant burden that need more attention and follow-up care.
Parenting a child with HIE is one of the most emotionally complex journeys a family can face, and yet conversations about parental mental health are still too rare. In this Peer Perspective Series panel, three HIE parents opened up about their own mental health journeys with honesty and vulnerability. Follow along as we highlight the key takeaways that Kat, Ravi, and Kori […]
Many children in the HIE community undergo surgical procedures — sometimes several over the course of their lives. And yet, for most families, anesthesia can feel overwhelming or like a mystery. What exactly happens before, during, and after surgery? Who is on the team? And how do you prepare a child with HIE for what’s coming? In our recently streamed […]
Navigating an HIE diagnosis is its own complex journey—and for some families, that path eventually leads to a second diagnosis: autism. In this Peer Perspective panel, Hope for HIE social worker Jen Schaefer was joined by community members Crystal F., Kacie M., and Crystal E., who shared their lived experiences at the intersection of HIE and autism. Together, they explored […]
Every April 20th, we come together as a community to honor and remember the children lost to HIE too soon and the families who carry them forward every day. In our recent Child Life Q&A we sat down with Annie Gunning, Certified Child Life Specialist and Grief Counselor, for a conversation centered around remembrance — and the grief that lives […]
Connect with families, read inspiring stories, and get helpful resources delivered right to your inbox.
Connect with families, read inspiring stories, and get helpful resources delivered right to your inbox.
