The HIE Registry — a combined effort between Hope for HIE, the Cerebral Palsy Research Network (CPRN), and the Newborn Brain Society (NBS) — has been awarded a three-year grant from the Pediatric Epilepsy Research Foundation (PERF) to expand what it can do. For our community, that means better data, better research, and better answers. Why it matters HIE has […]
At Hope for HIE, we follow the latest research so our community can see how science is moving the needle for babies and families affected by HIE. This round-up brings together six recent studies and expert articles that, taken together, capture where the field is heading: toward care that treats the whole baby, brings families closer, looks ahead to predicting […]
While epilepsy and cerebral palsy get far more attention as noted outcomes from HIE, the prevalence of learning, attention and behavioral challenges, especially for those who have experienced a more mild outcome from HIE, are a significant burden that need more attention and follow-up care.
They walked. They talked. They hit the milestones — and somewhere along the way, you were told they were doing great. And then, often years later, something else surfaced. Trouble with memory, attention, or organization. A short fuse and big emotions that didn’t match the moment. Struggles with planning, transitions, or keeping up at school — even though, on paper, […]
Hope for HIE families, researchers, clinicians, and advocates from around the world came together, online and in-person, for the 2026 Family & Community Conference, held April 24–26 at the Hyatt Regency Boston. Themed around connection, support, and science, the hybrid event welcomed the full spectrum of the HIE community — from newly diagnosed families and seasoned advocates to leading neonatologists […]
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