On February 5–6, 2026, leaders from the FDA, academia, industry, and advocacy convened for ADEPT 10: Addressing Challenges in Neonatal Product Development – Leveraging Rare Disease Frameworks. The workshop focused on overcoming barriers in neonatal drug development — from ethical complexity and small populations to innovative trial designs, real-world data, and regulatory pathways. Importantly, HIE was recognized as a key […]
Hope for HIE was honored to participate in the 2026 International Newborn Brain Conference (INBBC)—a global gathering of clinicians, researchers, industry partners, and advocates committed to improving outcomes in neonatal brain injury. It was deeply meaningful to have such extensive representation from Hope for HIE’s staff, Board of Directors and Medical Advisory Board—including Dr. Danielle Barber (Board of Directors & […]
We are pleased to announce Hope for HIE has been approved for a funding award through the Eugene Washington PCORI Engagement Award Program, an initiative of the Patient-Centered Outcomes Research Institute (PCORI). The funds will support convening a group of HIE stakeholders to build and strengthen research partnerships in HIE. Betsy Pilon, Executive Director, will lead the engagement project at Hope for HIE. […]
Families impacted by hypoxic ischemic encephalopathy (HIE) and other newborn brain injuries often live with long timelines of uncertainty. One of the most common questions we hear is: What will life look like when my child is older? A newly published multicenter study from the Neonatal Seizure Registry offers important, long-term insight by examining neurodevelopmental outcomes at ages 5–6 for […]
Most babies do not see neonatal therapists until after therapeutic hypothermia. At the 2022 National Association of Neonatal Therapists conference, Dr. Monica Arroyo and Betsy Pilon co-presented about HIE. A robust discussion elevated many issues that therapists face with being able to provide earlier developmentally-appropriate therapies for babies with HIE. Dr. Monica Arroyo, member of Hope for HIE’s Medical Advisory […]
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