Knowing seizure first aid is something EVERYONE should know. Just like becoming CPR-trained, it’s a skill you hope you don’t have to use, but glad you’ll have it if you do. The Epilepsy Foundation offers two tracks for getting seizure first aid trained – one is a 30 minute OnDemand course, offered online and fully accessible 24/7, and one is […]
Join us as we share the stories of Julie Makow and Margie Jones, two HIE moms, who connected through Hope for HIE on the road to kidney transplants for their children. With acute kidney injury and HIE, many children may have impacted kidney function. While Julie and Margie did not leave near each other, through Hope for HIE, they were […]
Epilepsy is the most common diagnosis to come from HIE. It impacts roughly 50-60% of our HIE population, and has a range of impacts — from more common and more easily treatable seizure disorders, to more aggressive, rare forms. There’s no doubt about it, epilepsy comes with a lot of worry, but there is always hope. There is hope in […]
NOVEMBER HOPE CONNECTIONS NEWSLETTER Now available! ? November is Epilepsy Awareness Month ? Giving Tuesday ? Halloween Costume Recap ? New Episode of Just Say HIE podcast Read Now
Some say it’s a grief journey, some say it’s through trauma… the journey with HIE is like no other. It is a multi-layered and complex journey that weaves grief, trauma, adaptation, and other ways to pick apart the experience in the most unexpected, heartbreaking, hopeful, and unimaginable ways. Recently, we were introduced to Nancy B. Miller’s adaptation stages, and so […]
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