HOPE CONNECTIONS NEWSLETTER – JUNE ISSUE In this issue: Navigating risk with kids activities and COVID19 Community call for action: Share photos, artwork and more Sleep webinar with Dr. Pryor Craig Just Say HIE podcast episodes Neonatal Seizure Registry update and enrollment Medical Advisory Board Update Partners in Hope program Read Here
FAMILIES ENROLLED IN THE NEONATAL SEIZURE REGISTRY: Enroll Now in the Follow Up Study If your child participated in the Neonatal Seizure Registry study, they are now eligible for a seizure follow-up study. We know as a community how important tracking long term outcomes is, and this new study follows development in children 3 and older. The aim of the […]
Hope for HIE’s Medical Advisory Board welcomed Dr. Brittney Pryor Craig, pediatric neurologist and pediatric sleep specialist, Tamara Smith, pediatric occupational therapist and HIE mom, Dr. Carole Zangari, AAC specialist and professor, and Tina Moreno, AAC specialist to the organization in this advisory capacity.
We are excited to welcome Dr. Monica Arroyo, pediatric neurologist, to the Medical Advisory Board bringing her expertise in neonatal neurocritical care to enhance communication and whole-family care and support as collaborations are built through the board initiatives. Her full bio is below. Dr. Monica Arroyo is an attending Pediatric Neurologist at Joe di Maggio Children’s Hospital in Hollywood, Florida. […]
Join us as Melanie Riggins, long time volunteer with Hope for HIE, and mom to Zoe and Maisie, talks about her experience with HIE, hypoxic ischemic encephalopathy, her NICU journey, and advice for moving through the different parts of the United States educational system. Melanie is a talented graphic designer and owner of her own freelance company, Melanie Riggins Designs. In […]
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