Raising Awareness: Full-Term NICU Awareness Month February is Full-Term NICU Awareness Month, a time to shed light on the journeys of full-term babies who find themselves in the NICU, often unexpectedly. At Hope for HIE, we know that while Hypoxic Ischemic Encephalopathy (HIE) can happen across gestational ages, it primarily impacts full-term babies. This month, we’re focusing on the unique […]
Over the last several days, many concerns have been expressed in the United States and globally about several executive actions of the new leadership administration in the United States that could negatively impact, or are impacting, the HIE community in the United States and around the world. While it is not uncommon in the first several weeks of a new […]
Navigating an HIE diagnosis can be overwhelming, and having the right support at the right time can make all the difference. From the moment of diagnosis and throughout every stage of their journey, families need reliable information, compassionate guidance, and a strong support network—no matter the impact or outcome. To ensure this, we are committed to building a team that […]
Hope for HIE is thrilled to welcome Jennifer Schaefer, CAPSW, to the team as our new Social Worker. Jen brings over 17 years of social work experience, with direct NICU experience spending the last seven years working for Children’s Hospital of Wisconsin’s Level IV NICU. In her role, Jen will be leading and managing support programming for HIE families, providing […]
Did you know there are currently ZERO published long-term follow up guidelines for neonatal and pediatric-acquired Hypoxic Ischemic Encephalopathy? Thanks to members of our Medical Advisory Board, and leadership of the Neonatal Special Interest Group through the Child Neurology Society, we have begun the process to start the development of long-term follow-up guidelines for HIE. We had OVER 120 child […]
Connect with families, read inspiring stories, and get helpful resources delivered right to your inbox.
Connect with families, read inspiring stories, and get helpful resources delivered right to your inbox.
