The Jarett Family beautifully illustrates how connection and support can lead to meaningful moments that honor every unique HIE journey. At their wedding, Amelia’s aunt and uncle chose to forgo traditional wedding favors and instead made a donation to Hope for HIE in Amelia’s honor, with Amelia serving as the flower girl. To further raise awareness, a framed display with […]
We’re continually inspired by remarkable families like the Arnall Family, who have turned their personal journey with HIE into a powerful platform for raising awareness. Not only has Braedn been deeply involved in spreading awareness about HIE within his local gym community, but he has also made a significant impact as an HIE Awareness Month Ambassador. By sharing Hope’s informational […]
2024 was another incredible year for our organization — we are celebrating TEN YEARS as a confirmed charitable organization, growing from 200 families to now over 10,000 from 100+ countries! We’ve grown in nearly every way and have even officially expanded our mission to reflect the five pillars of service we dedicate to — Awareness, Advocacy, Education, Research and Support. […]
We’re constantly inspired by incredible families, like the Niblett Family, who have turned their experience with HIE into a powerful force for advocacy and support. Not only have Romm and his family become deeply involved in the research and advocacy space in Australia, but Romm also serves as a peer support mentor, offering guidance, connection, and support to other families. […]
Understanding Blood Gases: A Guide for Parents of Babies with HIE When your baby is diagnosed with hypoxic-ischemic encephalopathy (HIE), it can feel overwhelming to navigate the medical information and terminology. One term you may hear frequently in the neonatal intensive care unit (NICU) is “blood gases.” Understanding what blood gases are and why they are important can help you […]
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