Is HIE rare or not? That is a common question! The answer, as usual with HIE, is not a clear yes or no but rather a sometimes or maybe, or depends on the context and who you ask. HIE itself is typically not considered rare, impacting roughly 2-3 per 1,000 live births in high-income countries (which is considered rare in […]
Supporting siblings of children with HIE or medical complexities can feel like walking a tightrope. You want to ensure they feel included, understood, and supported, but with so much focus on medical care, it’s easy to wonder if you’re doing enough. You’re not alone in this—so many parents in our community have the same questions and concerns. That’s why we […]
Cerebral palsy is one of the more common diagnoses from HIE. While HIE-acquired cerebral palsy only accounts for roughly 10-15% of all cerebral palsy causes, roughly 40% of children diagnosed with HIE will go on to be diagnosed with cerebral palsy.
We are sharing all about the connection between HIE and cerebral palsy during March, and sharing resources for our community to learn more.
Hope for HIE recently had an exploratory meeting with researchers looking into improving care for children who experience Disorders of Consciousness (DOC) from pediatric-acquired HIE, older than six months old. The workgroup’s intent is to advance multidisciplanary collaborative research, globally, for this underserved population in our community. Debra Curran, HIE parent, was a featured speaker at the Pediatric Neurocritical Care […]
Updated: March 16, 2026 Representation for disability, HIE, and cerebral palsy in media — movies, books, and television — just got another boost. Netflix’s latest release, “Lucca’s World,” is a poignant drama that delves into the challenges and triumphs of a family navigating life with a child born with HIE, and diagnosed with cerebral palsy. The film is inspired by […]
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