We are pleased to announce Hope for HIE has been approved for a funding award through the Eugene Washington PCORI Engagement Award Program, an initiative of the Patient-Centered Outcomes Research Institute (PCORI). The funds will support convening a group of HIE stakeholders to build and strengthen research partnerships in HIE. Betsy Pilon, Executive Director, will lead the engagement project at Hope for HIE. […]
As the season of giving unfolded, Hope for HIE was honored to conclude 12 Days of Hope—a heartfelt reflection on the many ways our community shows up for families around the world impacted by hypoxic ischemic encephalopathy (HIE). Over twelve days, we shared powerful stories directly from our families, volunteers, and advocates—stories told in their own words. Each one served as […]
Together We Raised Over $12,000 💛 At Hope for HIE, our heart has always been, and will always remain, with families impacted by neonatal and pediatric-acquired Hypoxic Ischemic Encephalopathy (HIE). Our mission is to improve the quality of life for these children and their families by offering awareness, education, and support. This past Giving Tuesday, our community once again showed […]
In the world of Hope for HIE, we believe in the power of community, the strength of unity, and the unwavering resilience of families navigating the challenges of neonatal and pediatric-acquired HIE. And what better way to embody these principles than becoming a 2026 Hustle for Hope 5K Host? Just last year, more than 13 dedicated hosts organized local events […]
and the Hustle goes to… Wow—Hustle for Hope 2025 was one for the books! Whether you hit the pavement, strolled with your crew, or cheered from the sidelines, our community showed up in a huge way. Across the world, you helped raise awareness, funds, and most importantly—hope—for every family facing HIE. This year, we had over 1,000 registrants, hosted 13 […]
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