If you’re a parent of a child with HIE or cerebral palsy, you’ve likely seen glowing claims about photobiomodulation or red light therapy—TikTok videos, private social media groups, alternative providers, or companies promising it can “heal brain injury,” “reverse CP,” or “repair neurons.” It’s tempting. Parents want options, progress, and real hope. Families deserve evidence, not expensive interventions with no […]
We’re thrilled to share some exciting news at Hope for HIE—our Peer Support Mentor program continues to grow globally! We are proud to welcome Julie Ndung’u, our newest Peer Support Mentor and HIE mom. Julie is based in Kenya, strengthening our ability to support families around the world who are impacted by HIE. Adding another international mentor is a powerful […]
As the season of giving unfolded, Hope for HIE was honored to conclude 12 Days of Hope—a heartfelt reflection on the many ways our community shows up for families around the world impacted by hypoxic ischemic encephalopathy (HIE). Over twelve days, we shared powerful stories directly from our families, volunteers, and advocates—stories told in their own words. Each one served as […]
At Hope for HIE, we are constantly working to bridge families with the latest research, emerging therapies, and the experts who are pushing the field forward. Recently, we sat down with Dr. Brian Kalish, neonatologist, neuroscientist, and Vice Chair of Hope for HIE’s Medical Advisory Board, to learn about a new clinical trial he’s leading at Boston Children’s Hospital. This study […]
We are thrilled to share that Hope for HIE’s Executive Director, Betsy Pilon, joined Keira Sorrells on the NICUnity Podcast to dig into a conversation that sits at the heart of our work—what it truly takes to fund, sustain, and grow (inter)national parent-led organizations rooted in lived experience. This episode, “Funding Parent-Led Progress: What National Organizations Need Most,” shines a […]
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