Together We Raised Over $12,000 đź’› At Hope for HIE, our heart has always been, and will always remain, with families impacted by neonatal and pediatric-acquired Hypoxic Ischemic Encephalopathy (HIE). Our mission is to improve the quality of life for these children and their families by offering awareness, education, and support. This past Giving Tuesday, our community once again showed […]
Families facing hypoxic ischemic encephalopathy often turn to internet research for information about the condition and possible treatments. This tool will help families critically analyze what they are reading and if it is applicable to their child, and worth elevating to their medical team.
Families facing hypoxic ischemic encephalopathy often turn to internet research for information about the condition and possible treatments. This tool will help families critically analyze what they are reading and if it is applicable to their child, and worth elevating to their medical team.
Families facing hypoxic ischemic encephalopathy often turn to internet research for information about the condition and possible treatments. This tool will help families critically analyze what they are reading and if it is applicable to their child, and worth elevating to their medical team.
In 2019, Hope for HIE’s executive director, Betsy Pilon, published a family reflection in Pediatric Research that helped spark a broader conversation about what families navigating hypoxic-ischemic encephalopathy (HIE) need from their medical teams, researchers, and the systems meant to support them. It elevated long-standing concerns about diagnostic clarity, communication, long-term follow-up, and the disconnect between clinical outcomes and what […]
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