We are excited to share that registration is officially open for the 2026 Hope for HIE Family & Community Conference, taking place April 24–26, 2026 in Boston, Massachusetts, with options to join in person or online. We are excited to put together a robust, meaningful, and exciting program that blends support, science and celebration of community for HIE families, across […]
Pregnancy after an HIE diagnosis can bring forward a complicated mix of emotions—hope and fear, grief and joy, confidence, and anxiety—all at the same time. In this Peer Perspective panel, Hope for HIE social worker, Jen Schafer, was joined by community members Sarah and Suzi, who shared their lived experiences navigating pregnancy, birth, and family life after HIE. As with […]
We’re proud to share one of our amazing Hope for HIE kids, William, has been named as a 2026 Champion for Children’s Miracle Network Hospitals at Orlando Health Arnold Palmer Hospital for Children! William’s Story After 41 long weeks of anticipation, Brigid and John were overjoyed to finally meet their baby boy. But William’s arrival was anything but routine. Born […]
Every HIE journey is different — and yet, there are powerful threads that connect families across experiences, diagnoses, hospitals, and years. In this Peer Perspective Series conversation, Brigid and Ana, both mothers of children with HIE, shared their lived experiences as full-term NICU families and how those experiences shaped their paths into advocacy, healing, and connection. Their stories remind us that advocacy […]
2025 was another incredible year for our organization — a surge of research partnerships, increasing both the quality and depth of our support programs and services, and setting the course for the next five years of organizational growth to meet our mission. As we reflect on the past year at Hope for HIE, one thing is clear: hope grows when […]
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