We are pleased to announce Hope for HIE has been approved for a funding award through the Eugene Washington PCORI Engagement Award Program, an initiative of the Patient-Centered Outcomes Research Institute (PCORI). The funds will support convening a group of HIE stakeholders to build and strengthen research partnerships in HIE. Betsy Pilon, Executive Director, will lead the engagement project at Hope for HIE. […]
Families impacted by hypoxic ischemic encephalopathy (HIE) and other newborn brain injuries often live with long timelines of uncertainty. One of the most common questions we hear is: What will life look like when my child is older? A newly published multicenter study from the Neonatal Seizure Registry offers important, long-term insight by examining neurodevelopmental outcomes at ages 5–6 for […]
Presented by Hope for HIE and the Newborn Brain Society In April 2026, during HIE Awareness Month, Hope for HIE and the Newborn Brain Society are partnering to improve family-centered care for babies and families facing neonatal Hypoxic Ischemic Encephalopathy. Together, they are launching Polar Bear Care through a worldwide Hold-a-thon, encouraging NICUs around the world to implement this family-centered, […]
Most babies do not see neonatal therapists until after therapeutic hypothermia. At the 2022 National Association of Neonatal Therapists conference, Dr. Monica Arroyo and Betsy Pilon co-presented about HIE. A robust discussion elevated many issues that therapists face with being able to provide earlier developmentally-appropriate therapies for babies with HIE. Dr. Monica Arroyo, member of Hope for HIE’s Medical Advisory […]
Hope for HIE welcomes the updated 2026 American Academy of Pediatrics (AAP) Committee on Fetus and Newborn Clinical Report, Therapeutic Hypothermia for Neonatal Hypoxic-Ischemic Encephalopathy. The report provides clear, evidence-based guidance on therapeutic hypothermia (TH) for infants with moderate-to-severe HIE, reinforces critical safety and implementation standards, and importantly highlights family consultation in borderline and late-presenting cases. We applaud this continued […]
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