Hope for HIE – Hypoxic Ischemic Encephalopathy Hope for HIE – Hypoxic Ischemic Encephalopathy

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5K Your Way: Become a Hustle for Hope 5K Host!

5K Your Way: Become a Hustle for Hope 5K Host!

November 14th, 2025  | Advocacy  | Fundraising  | Hustle for Hope 5K  | News

In the world of Hope for HIE, we believe in the power of community, the strength of unity, and the unwavering resilience of families navigating the challenges of neonatal and pediatric-acquired HIE. And what better way to embody these principles than becoming a 2026 Hustle for Hope 5K Host? Just last year, more than 13 dedicated hosts organized local events […]

Updated 2025 Neonatal Resuscitation Guidelines: What’s New for Babies at Risk of HIE

Updated 2025 Neonatal Resuscitation Guidelines: What’s New for Babies at Risk of HIE

November 10th, 2025  | Advocacy  | Care  | News  | Research

The American Heart Association (AHA) and American Academy of Pediatrics (AAP) have released updated 2025 Guidelines for Neonatal Resuscitation, shaping how birth and neonatal teams respond in the crucial first minutes of life.These updates strengthen evidence around cord management, refine resuscitation practices, and emphasize team readiness—all with the goal of improving outcomes for newborns, especially those at risk of hypoxic-ischemic […]

Malik Turns 9: A Birthday Reflection

Malik Turns 9: A Birthday Reflection

November 9th, 2025  | Advocacy  | Cerebral Palsy  | Family Stories  | News

November 7, 2025 our son, Malik – King , Hans – God is merciful , Mnaro – his papa….. Turned 9 and it has taken me two days to find words but I still don’t have the right ones. When his cerebral palsy diagnosis was given to us years ago our world literally crushed. The 1st doctor we saw Dr. […]

Turning Connection into Collective Action: HIElights from the 2025 Hope for HIE Leadership Summit

Turning Connection into Collective Action: HIElights from the 2025 Hope for HIE Leadership Summit

October 24th, 2025  | Advocacy  | News  | Research

When Hope for HIE began more than a decade ago, it started as a small online peer group of families determined to make sense of life after a neonatal brain injury. Today, that same spirit of connection fuels a global nonprofit driving change across clinical care, research, and advocacy building awareness and comprehensive support for children and families.. In October […]

Improving Care through Updated Guidelines: Continuous EEG in HIE Babies

Improving Care through Updated Guidelines: Continuous EEG in HIE Babies

October 20th, 2025  | Advocacy  | Epilepsy  | News  | Research

At this year’s Child Neurology Society Annual Meeting, a major seminar brought together leading experts, including patient advocacy, to talk about the importance of better screening for neonatal seizures, including the use of Continuous EEG (cEEG). Better screening ensures more information is known about a newborn’s neurological status, which often leads to different treatment paths, and even the confirmation of […]

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