February is Heart Month and Congenital Heart Defect Awareness Month. As with every other system in the body, Neonatal and Pediatric-acquired Hypoxic Ischemic Encephalopathy (HIE) can also impact cardiovascular health and function, and there’s also an overlap with Congenital Heart Defects and HIE (as well as other types of brain injury). HIE can negatively impact the cardiovascular system, either transiently […]
Registration is officially OPEN for Hope for HIE’s 7th annual Hustle for Hope 5K Event! This event is more than a race. It is a fundraiser that directly supports the programs of Hope for HIE, advancing awareness, advocacy, education, research, and support for children and families impacted by HIE around the world.We invite our families, community members, NICUs, PICUs, and […]
Presented by Hope for HIE and the Newborn Brain Society In April 2026, during HIE Awareness Month, Hope for HIE and the Newborn Brain Society are partnering to improve family-centered care for babies and families facing neonatal Hypoxic Ischemic Encephalopathy. Together, they are launching Polar Bear Care through a worldwide Hold-a-thon, encouraging NICUs around the world to implement this family-centered, […]
Pregnancy after an HIE diagnosis can bring forward a complicated mix of emotions—hope and fear, grief and joy, confidence, and anxiety—all at the same time. In this Peer Perspective panel, Hope for HIE social worker, Jen Schafer, was joined by community members Sarah and Suzi, who shared their lived experiences navigating pregnancy, birth, and family life after HIE. As with […]
We’re proud to share one of our amazing Hope for HIE kids, William, has been named as a 2026 Champion for Children’s Miracle Network Hospitals at Orlando Health Arnold Palmer Hospital for Children! William’s Story After 41 long weeks of anticipation, Brigid and John were overjoyed to finally meet their baby boy. But William’s arrival was anything but routine. Born […]
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