Epilepsy truly embodies a “trial and error” approach sometimes. Certain types of seizure disorders and seizure types are more responsive to specific medications than others. Epilepsy in HIE is pretty common, and HIE is a leading cause of some specific types of epilepsy and seizure disorders. Why are seizure problematic? Sometimes they can inhibit development, learning, and focus. Sometimes they […]
There is a cohort of kids who will persistently need medications out of the NICU, and there are children who will not have persistent seizures, or experience neonatal seizures at all, but develop epilepsy later in childhood. There are a few nuances for what is most typically seen with these epilepsy cases, and some things to ask about (some of […]
What do families need to know when they are getting discharged from the NICU after HIE about epilepsy? A few things! HIE is the top cause of neonatal seizures, and can lead to various more common, and rare, seizure disorders and epilepsy. Knowledge is empowerment, during a time where things feel very much out of control. We think of empowering […]
Knowing seizure first aid is something EVERYONE should know. Just like becoming CPR-trained, it’s a skill you hope you don’t have to use, but glad you’ll have it if you do. The Epilepsy Foundation offers two tracks for getting seizure first aid trained – one is a 30 minute OnDemand course, offered online and fully accessible 24/7, and one is […]
HIE shifts family dynamics — whether a child born with HIE is the first, and siblings come later, or is born somewhere in the middle, or is the last baby, it impacts the siblings of the family in a myriad of ways, no matter the outcome.
Hope for HIE is committed to fostering connections to help families navigate through the unique circumstances that pop up — whether that is medical complexities, balancing family time with therapies and appointments, bereavement support and more.
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