Every April 20th, we come together as a community to honor and remember the children lost to HIE too soon and the families who carry them forward every day. In our recent Child Life Q&A we sat down with Annie Gunning, Certified Child Life Specialist and Grief Counselor, for a conversation centered around remembrance — and the grief that lives […]
March is Child Life Month, and we celebrated by sitting down with Hope for HIE’s Certified Child Life Specialist and Grief Counselor, Annie Gunning, for a Child Life Q&A. Annie answered some of the most common questions families have about child life support — both inside the hospital and right here at Hope for HIE. Missed the live Q&A? No […]
In our recent Child Life Q&A, we met with Hope for HIE’s Child Life Specialist and Grief Counselor, Annie Gunning, to talk about a powerful, simple tool for connection: infant massage. For families who have experienced a NICU stay, medical trauma, or disrupted early bonding, this conversation offered reassurance and hope. Below are the key takeaways — plus details about […]
February is Heart Month and Congenital Heart Defect Awareness Month. As with every other system in the body, Neonatal and Pediatric-acquired Hypoxic Ischemic Encephalopathy (HIE) can also impact cardiovascular health and function, and there’s also an overlap with Congenital Heart Defects and HIE (as well as other types of brain injury). HIE can negatively impact the cardiovascular system, either transiently […]
When your child’s life is shaped by medical complexity, childhood can too easily become defined by appointments, procedures, and precautions. At Hope for HIE, we believe every child deserves the chance to experience the magic of summer camp: friendship, laughter, and the simple joy of just being a kid. For children with HIE and other complex medical needs, that magic […]
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