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Finding a Community & Empowerment: Beth’s Story

Finding a Community & Empowerment: Beth’s Story

April 26th, 2022  | Family Stories  | News  |  By Beth A.

Beth, mom to Rowan, recently joined the Hope for HIE Parent Support Hub on Facebook. Rowan is three years old and was diagnosed with HIE (hypoxic ischemic encephalopathy) at birth, and with global developmental delay at six months old. “Finding the Hope For HIE group has helped me in so many different ways the past few months. I’ve connected with […]

Peer Support Mentorship Program Launches – Meet the Mentors

Peer Support Mentorship Program Launches – Meet the Mentors

April 22nd, 2022  | News

Hope for HIE is pleased to share the first cohort of the Peer Support Mentor program launching this month. As a part of the outgrowth of Hope for HIE’s support programs, Vanessa Zinke, LCSW, has been diligently working to launch a 1:1 peer support mentorship program for HIE families who are either new to HIE, or new to loss from […]

“I have an idea!” – Hope for HIE’s Birthday Card Program

“I have an idea!” – Hope for HIE’s Birthday Card Program

April 22nd, 2022  | News

HOPE INSPIRES SUPPORT Megan C. reached out to Hope for HIE with an idea — to help families during a joyous and tough time feel supported and loved by starting a birthday card program. We assembled a team of volunteers who have been sending out cards to our HIE community families that kicked off earlier this year. Volunteers were stocked […]

Remembering Scout: Ashley’s Story

Remembering Scout: Ashley’s Story

April 20th, 2022  | Family Stories  | News  |  By Ashley Crowe

Our precious son Scout was born August 3rd, 2021 by emergency cesarean after a failed induction. To our shock, he was born with no heart beat. Our medical team revived him after 15 minutes of CPR and three rounds of EPI. We were quickly warned that his outcome would be unknown. As I went to recovery, Scout went up to […]

Remembering Jackson: Codi’s Story

Remembering Jackson: Codi’s Story

April 20th, 2022  | Family Stories  | News

I’ll forever go back to the day I found out I was pregnant – scared; nervous and terrified to have my first baby. I wish more than anything I could rewind my life to that moment and be as naïve as to what could happen as I was back then. I had a picture-perfect pregnancy. Everything went smooth, at least […]

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