Simran Bansal, graduating senior at Duke University, spent the last year as Hope for HIE’s first intern. As a part of her senior capstone project, she interviewed over 65 families and clinicians involved in the HIE community, to put together an anthology of the Hope for HIE community. Through storytelling, Simran wanted to help families heal, give them an opportunity […]
We continue building out the most comprehensive multidisciplinary group to advise us as we grow and fulfill our mission and are excited to announce the appointment Dr. Jori Bogetz to Hope for HIE’s Medical Advisory Board. Dr. Bogetz brings incredible expertise and passion to the focus area of pediatric palliative care medicine. Through her work, she helps children and families who […]
ReAlta Life Sciences, Inc. (“ReAlta”) a clinical stage, rare disease company addressing life-threatening diseases through harnessing the power of the immune system, announces its support of Hope for HIE, a global patient advocacy organization, as a platinum-level Partner in Hope, during April’s HIE Awareness month. HIE, or hypoxic ischemic encephalopathy, is a type of brain injury that impacts babies around […]
Hi. I’m Steve, and what I’m about to share isn’t simply just a pump for an extremely worthy cause because there are so many – it’s an important piece of my life’s puzzle that I want to talk about and yet it’s an issue that’s still shrouded in a lot of mystery, maybe in part due to all of the […]
Hope for HIE was selected as a pilot partner in the new Neurology Social Services Network program between the Child Neurology Foundation and Unite Us. Unite Us is the nation’s leading technology company connecting health and social care services. Intended to fill a gap reported by families in the Child Neurology Foundation’s network, this partnership is a coordinated effort to […]
Connect with families, read inspiring stories, and get helpful resources delivered right to your inbox.
Connect with families, read inspiring stories, and get helpful resources delivered right to your inbox.
