Families facing hypoxic ischemic encephalopathy often turn to internet research for information about the condition and possible treatments. This tool will help families critically analyze what they are reading and if it is applicable to their child, and worth elevating to their medical team.
Every child deserves the opportunity to navigate their path and confidently own their story, but for children with HIE, their path to self-advocacy can be uniquely challenging. That’s why Annie Gunning, Hope for HIE’s certified child life specialist, recently participated in a Q&A session aimed at equipping them with tools and strategies that will empower them to advocate for their […]
Advocacy is important; there’s no doubt about it. But let’s face it: putting it into action can be hard, especially when navigating the complexities of medical care. Between emotions running high, the need to digest large amounts of not-so-easy-to-understand information, and the pressure to make quick but responsible decisions, it’s totally normal to feel overwhelmed. Plus, add in the uncertainty, […]
As a parent or caregiver of a medically complex child, you’re likely aware of the discomfort they may experience when visiting the dentist. From navigating inaccessible spaces to managing heightened sensitivities, every aspect of the dental visit can pose unique challenges. It may feel as if you’re constantly navigating these hurdles in order to provide them with the oral health […]
As any parent may attest, there are times throughout the year when supporting your child’s schoolwork can cause stress. After all, when — no — why did they change math? As a parent or caregiver of a medically complex child who may undergo several planned or unplanned hospitalizations, you may know all too well the stress that comes with navigating […]
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