Families facing hypoxic ischemic encephalopathy often turn to internet research for information about the condition and possible treatments. This tool will help families critically analyze what they are reading and if it is applicable to their child, and worth elevating to their medical team.
When your child needs an EEG, it’s completely normal for them to feel anxious. The unfamiliar equipment, the idea of having electrodes attached to their head, and the pressure to stay still can all be a lot to handle. That’s why prepping for the procedure through pretend play or role-playing is such a helpful tool. By making the process more […]
We all know that friendships can be tough to navigate, and for children within our Hope community, there are often more challenges to consider: differences in communication styles, physical abilities, sensory sensitivities, or emotional regulation can all influence how they (and their siblings) connect with their peers. So, how can parents and caregivers help their children build meaningful friendships in […]
If we were to ask any parent, family member, or caregiver in our community how important it is to provide proper support for siblings of children with medical complexity, you can bet we’d get an emphatic “VERY!” as their reply. We know this support is important, but do we really know why? As it turns out, researchers have been collecting […]
Grieving the loss of a loved one is not a linear experience, and there’s no one-size-fits-all solution for every family. At Hope, we want to provide families with various resources to help the healing process and empower them to find what works best for their unique situation. That’s why Annie Gunning, Hope’s Certified Child Life Specialist and Grief Counselor, met […]
Connect with families, read inspiring stories, and get helpful resources delivered right to your inbox.
Connect with families, read inspiring stories, and get helpful resources delivered right to your inbox.
