Join us as we share the stories of Julie Makow and Margie Jones, two HIE moms, who connected through Hope for HIE on the road to kidney transplants for their children. With acute kidney injury and HIE, many children may have impacted kidney function. While Julie and Margie did not leave near each other, through Hope for HIE, they were […]
Epilepsy is the most common diagnosis to come from HIE. It impacts roughly 50-60% of our HIE population, and has a range of impacts — from more common and more easily treatable seizure disorders, to more aggressive, rare forms. There’s no doubt about it, epilepsy comes with a lot of worry, but there is always hope. There is hope in […]
NOVEMBER HOPE CONNECTIONS NEWSLETTER Now available! ? November is Epilepsy Awareness Month ? Giving Tuesday ? Halloween Costume Recap ? New Episode of Just Say HIE podcast Read Now
Recently, new research was published about cooling therapy and that seizures are common in the rewarming process. In the quality improvement process, this is welcomed data to look at how clinicians can look at ways to reduce seizures during the rewarming process, to treat and control them, leading to improved quality of life. Sometimes they may be having seizures because […]
Some say it’s a grief journey, some say it’s through trauma… the journey with HIE is like no other. It is a multi-layered and complex journey that weaves grief, trauma, adaptation, and other ways to pick apart the experience in the most unexpected, heartbreaking, hopeful, and unimaginable ways. Recently, we were introduced to Nancy B. Miller’s adaptation stages, and so […]
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