This day ten years ago was not a good day. At some point in the wee hours of that morning, about eight hours after Kohl was born, we were abruptly awoken by the resident on call. She had the misfortune to inform us that Kohl started having seizures, had to be intubated and would need to be transported to our […]
Katie Taylor, CEO of Child Life On Call & Podcast, highlighted the HIE parent experience in a recent interview with Betsy Pilon, Executive Director. You can listen below, or where you listen to your favorite podcast:
We are excited to share the 2021 Hope for HIE Impact Report: Interactive Document: Printable PDF:
The holidays are one of the toughest times of the year for our families. Expectations of what life was “supposed” to be like, in the thick of cold and flu season, and the last couple of years… a global pandemic. Since 2016, Hope for HIE has given away over $10,000 per year in items that improve the quality of life […]
Sleep issues are very common with HIE (hypoxic ischemic encephalopathy), and across all outcomes. Sleep interruptions with HIE have a link to the sleep/wake cycle. We recently sat down with Dr. Chris Carosella, double-boarded Pediatric Neurologist & Sleep Medicine specialist, and Hope for HIE Medical Advisory Board member, to discuss sleep issues in children with HIE and other neurological conditions. […]
Connect with families, read inspiring stories, and get helpful resources delivered right to your inbox.
Connect with families, read inspiring stories, and get helpful resources delivered right to your inbox.
